Our Founding Story

We founded PNOC Foundation to support the work of PNOC in 2013. In 2010 our son George started experiencing morning headaches and nausea. He was diagnosed with a brain tumor, an ependymoma, the size of a small orange, located on the right side of his brain. George underwent 10 hours of surgery and 31 sessions of subsequent radiation therapy. George is now in college and we know we are blessed. We pledge to make the difference in the lives of other children and their families affected by brain tumors by raising awareness and funds for research and clinical trials.

When our own son George was diagnosed with brain cancer, treatment options were limited – there was no precision medicine, no genetic sequencing or subtyping, there weren’t any new promising therapies, very few clinical trials and treatment centers were working largely in isolation from each other.

We were shocked to learn that scientific collaboration was not the norm, far from it. Academic advancement, competition for the limited available research grants and the rare nature of this disease and corresponding lack of economic incentive for Big Pharma were all forces conspiring against cooperation and collaboration to defeat this monster. Treatments and outcomes had not progressed in over 50 years.

When Dr’s Michael Prados and Sabine Mueller at UCSF asked us to form a non-profit to support a transformative initiative of true collaboration, institutional partnership and information sharing to accelerate discovery, progress, better treatments and ultimately a cure, we didn’t hesitate. PNOC Foundation was formed to exclusively support the work of the PNOC Scientific Consortia.

In 2023 we celebrated the end of the first remarkable decade in which the idea of PNOC was conceived and has now grown into the world’s leading international pediatric brain cancer consortia. We are proud to be giving access to new treatment options for kids and their families fighting the deadliest of childhood cancers.

Hope is on the horizon, a future where we lose no child to brain cancer is within reach.  As we harness the scientific breakthroughs and discoveries of PNOC’s first decade they are being amplified them with more powerful new discoveries and technologies.

None of this would be possible without the incredible support of you our loyal donors. PNOC Foundation is the largest financial contributor to PNOC’s research and clinical trials.  We are incredibly grateful for your support that has allowed PNOC’s progress and tireless efforts to change the landscape of pediatric brain cancer treatment.

Bruce and Allyn Campbell

“For too many families, a pediatric brain tumor diagnosis ends in the loss of a young life, so much potential stolen from us. We feel incredibly blessed that our son survived. We want to help find a cure so fewer families suffer devastating loss, and to improve treatments that will help lessen the long-term impacts on surviving children.

There has never been a more promising time in history to invest in cancer research. Childhood cancer is poised for unprecedented breakthroughs.”


Allyn Campbell, Co-founder, PNOC Foundation